Special Needs Local Resource Directory It is our hope that this directory helps you find some resources and community services that will support your family members with special needs. SEA200 does not have the ability to assess the competence of any of the following listings. It is up to each individual to question and investigate those listings that you are interested in using. Don＊t forget to check for licensing, fees and health insurance acceptance as needed. SEA200 does not endorse any of the following. Any feedback is appreciated and kept confidential. Please contact us at SEA200.org. Medical,Therapeutic and Other Professional Resources ALLERGIST/IMMUNOLOGISTS An allergist is a medical doctor specializing in the diagnosis, treatment and continued support of patients with allergies and asthma.
Nirmala Arora, M.D., S.C. 3825 Highland Ave., Tower 2, Downers Grove, IL 60515; (630) 769-1122
Food Allergy Network
(800) 929-4040; www.foodallergy.org
The Food Allergy & Anaphylaxis Network (FAAN) was established in 1991. FAAN membership now stands at more than 26,000 worldwide and includes families, dietitians, nurses, physicians, school staff, government agencies, and the food and pharmaceutical industries. FAAN serves as the communication link between the patient and others.
Diane L. Ozog, M.D., S.C.
3825 Highland Ave., Tower 2 - Suite 204, Downers Grove, IL 60515; (630) 852-8182
AUDIOLOGISTS
Audiological Services
386 Pennsylvania Ave., Glen Ellyn; (630) 858-3277
Central Auditory Processing Evaluation and Treatment
Jeanane Ferre, PhD; 1010 Lake St., Suite 111, Oak Park; (708) 848-4363;
E-mail: jmfpdh@aol.com
Hearing Health Center
Central DuPage Hospital Medical Bldg., Naperville; (630) 369-8878
Dr. Willard Hooks, Jr. PhD, CCC-A/SLP
1020 E. Ogden Ave., Suite 212, Naperville; (630) 305-8288;
E-mail: otoling@mac.com
Auditory services include auditory processing disorder evaluation, hearing evaluation for hearing sensitivity, speech reception and discrimination, middle ear function and cochlear hair cell function and cochlear implants. Dr. Hooks has experience working with children on the autism spectrum.
BEHAVIOR CONSULTANTS
Jenny Potanos, Autism Consultant
(630) 510-8021; E-mail: jpotanos@speakeasy.net
CHIROPRACTORS These professionals, also known as doctors of chiropractic or chiropracticphysicians, diagnose and treat patients whose health problems are associated with the body＊s muscular, nervous, and skeletal systems, especially the spine. Chiropractors believe interference with these systems impairs normal functions and lowers resistance to disease. They also hold that spinal or vertebral dysfunction alters many important body functions by affecting the nervous system. Their approach is holistic and chiropractors provide natural, drugless, nonsurgical health treatments, and rely on the body＊s inherent healing abilities. They also recommend lifestyle changes 〞 in eating, exercise, and sleeping habits, for example 〞 to their patients. When appropriate, chiropractors consult with and refer patients to other health practitioners.
Gauthier Health Care, 57 Danada Square East, Wheaton, IL 60187; (630) 682-8681
CLINICS/AGENCIES FOR EVALUATIONS SEA200 advises members to have their children evaluated/diagnosed by health-care professionals who are professionally qualified to give diagnoses in the specific area of concern. It is recommended by www.wrightslaw.com and other professionals to have an independent cognitive and academic assessment on your child as a starting point when discussing supports and services for the IEP and as a follow-up to determine if the child is making academic progress.
Adult Down Syndrome Center 1999 Dempster Ave.; Park Ridge, IL 60068; (847) 318-2303 Advocate Lutheran General Hospital
1675 Dempster St., Park Ridge; (847) 723-KIDS; developmental pediatric evaluations Easter Seals DuPage and the Fox Valley Region
630 S. Addison, Villa Park, IL 60181; (630) 620-4433; dfvr.easterseals.com
Little Friends Center for Autism 140 N. Wright St.; Naperville, IL 60540; (630) 305-6039
Marianjoy Rehabilitation Hospital 26W171 Roosevelt Road, Wheaton, IL 60187; (630) 462-4000; www.marianjoy.org
Oak Brook Behavioral Health 18W100 22nd St., Suite 130, Oakbrook Terrace, IL 60181; (630) 424-9204; www.obbh.org
University of Illinois at Chicago (UIC) Institute for Juvenile Research 1747 W. Roosevelt Road, Chicago IL, 60608; (312) 996-7723, (312) 996-0357 Marrea Winnega, Ph.D. Director Autism Services; Bennett Leventhal, MD; Ed Cook, MD; Tom Owley, MD. Offers comprehensive, multidisciplinary evaluations by a clinical psychologist and child psychiatrist, with an emphasis on diagnosis and consultation. IJR also provides treatment and consultation in behavior management, and educational programming for children and adults with autism and other pervasive developmental disorders.
Dr. Nichole Dawson 40 S. Clay St., Suite 204W, Hinsdale; (630) 789-0423; Experience with ASD children, does nonverbal testing 每 cognitive and academic evaluations.
Dr. Rene Szabo 417 W. Roosevelt Road, Suite 10, Wheaton; (630) 774-0177; cognitive and academic evaluations (Also see section on neuropsychology)
COMPOUNDING PHARMACIES
Many children with special needs have allergies, problems swallowing, and strong preferences or aversions to certain textures. This can make medications an issue instead of a help. Compounding pharmacies can custom-make medications in a range of formats to suit the needs of your child. They are quite different from a standard pharmacy that just adds flavor to liquid medications.
Glen Ellyn Pharmacy Robert Listecki, R.Ph. 486 Roosevelt Road, Glen Ellyn, IL 60137; (630) 469-5200
Martin Avenue Pharmacy Thomas Marks, R.Ph. 1247 Rickert Drive, Naperville; (630) 355-6400; www.martinavenue.com
HRI (Health Research Institute) Pharmacy 4575 Weaver Parkway, Warrenville, IL 60555; (630) 505-2842, (800) 505-2842
DENTISTS These dentists have been recommended by families as being attuned to the issues of special-needs children.
Richard Belniak, DDS 10 Danada Square West, Wheaton, IL 60187; (630) 665-7474
Kevin Bohm, DDS Wheaton Family Dentistry, 65 Danada Square East, Wheaton, IL 60817; (630) 681-1280
Diana Braka, DDS 610 E. Roosevelt Road, Wheaton, IL 60187; (630) 653-9002
Dr. Jeffrey Cantor Autism Dental Treatment Group, 927 S Mannheim Road, Westchester; (708) 349-1818; Former director of Easter Seals Dental Services. Excellent with children on the spectrum.
David L. Carlson, DDS 610 E. Roosevelt Road, Wheaton, IL 60187; (630) 653-9002
Jim Clousing, DDS 416 E. Roosevelt Road, Wheaton, IL 60187; (630) 668-4070
Dr. Tom Donahue Just for Kids; 1220 Hobson Road, Suite 224, Naperville; (630) 961-0996
Frank A. Kaman, DDS 467 Roosevelt Road, Glen Ellyn, IL 60137; (630) 469-5364
Kelly Orthodontics Dr. William Kelly 11 S. Sixth St., St. Charles; (630) 584-9666
Lance Lambert, DDS Pediatric Dentist 420 Pennsylvania Ave., Suite 103 Glen Ellyn, IL 60137; (630) 858-8755
Norman Mills, DDS 949 S. Main St., Lombard, IL 60148; (630) 629-5437
Patrick Pecora, DDS 586 Duane St. #301, Glen Ellyn, IL 60137 (630) 469-0296
Dr. Michael G. Peske Pediatric dentist; Naperville; (630) 983-9800
Dr. John Nathan Oakbrook, (630) 574-7336; Geneva (630) 208-1111; Dental surgeon with a large special-needs practice.
Dr. Robert Rada
EAR, NOSE AND THROAT SPECIALISTS (ENT)
The professional name for this type of specialist is Otolaryngologist. They are physicians trained in the medical and surgical management and treatment of patients with diseases and disorders of the ear, nose, throat, and related structures of the head and neck. They are commonly referred to as ENTs. An ENT＊s special skills include diagnosing and managing diseases of the sinuses, larynx (voice box), oral cavity, and upper pharynx (mouth and throat), as well as structures of the neck and face.
Michael Dunham, M.D. Childrens Memorial Hospital, 2300 Children︿ Place, Chicago, IL 60614 Also sees patients at the Westchester, (708) 836-4800, and Glenview, (847) 486-6550, offices. Dennis Moore, M.D. 1875 W. Dempster St., Suite 625, Park Ridge, IL 60068; (847) 518-1200
GENERAL PRACTITIONER OR FAMILY DOCTOR A general practitioner is an M.D. providing primary health care for children, teens and adults in a generalized, (non-specialized) medical practice. Most general practitioners have a good resource pool of specialists they can refer patients to when needed.
Cornerstone Medical 2001 Weisbrook Road, Wheaton, IL 60187; (630) 614-4000
HEMATOLOGISTS/ONCOLOGISTS Medical doctor specializing in the treatment of children and adolescents with blood disorders and cancer.
Ammar Hayani, M.D. Pediatric Sub-specialty Clinic, Central DuPage Hospital, 25 North Winfield Road Winfield, IL; (630) 933-6631
NEUROLOGISTS A neurologist is a board-certified medical doctor or osteopath who has trained in the diagnosis and treatment of nervous system disorders, including diseases of the brain, spinal cord, nerves, and muscles. Neurologists perform neurological examinations of the nerves of the head and neck; muscle strength and movement; balance, ambulation, and reflexes; and sensation, memory, speech, language, and other cognitive abilities.
Elizabeth Barry-Kravis, M.D. Rush-St. Lukes, 1725 W. Harrison St., Chicago, IL 60612; (312) 942-4036
Peter Heydemann, M.D. Rush-St. Lukes, 1725 W. Harrison, Suite 718, Chicago, IL 60612; Phone: (312) 942-4047; Fax: (312) 942-4168 Muhammad Najjar, M.D.
Edward Sleep Center, 801 S. Washington Naperville, IL 60540; (630) 305-5100
Rita Yadava, M.D., S.C.
NEUROPSYCHOLOGISTS
A pediatric neuropsychologist is a licensed clinical psychologist with expertise in how learning and behavior are associated with the development of brain structures and systems. Children are often referred by their primary doctor because of developmental problems; difficulties in learning, attention, behavior, socialization or emotional control; disease or brain injury from an accident or birth injury. Pediatric neuropsychologists are skilled at diagnosing learning and behavior disorders caused by altered brain function or development. Michael Appleby, Ph. D.
18W100 22nd St., Suite 130, Oakbrook Terrace, IL 60181; (630) 424-9204; www.obbh.org Roger Stefani, Ph.D.
700 Ravinia Avenue, Orland Park, IL 60462; Phone: (708) 349-4420; Fax: (708) 349-4421; Assistant Robin Speizman handles appointments.
NEUROSURGEONS Neurosurgeons are specialized medical doctors who perform surgery on the brain and other nerve tissues. This area has many sub-specialties within it.
John Ruge, M.D., F.A.C.S. Medical Director, Midwest Children＊s Brain Tumor Center; Chief, Pediatric Neurosurgery 每 Lutheran General Hospital; 1875 Dempster St., Park Ridge, IL 60068; (847) 698-1088
NUTRITIONISTS plan food and nutrition programs, and supervise the preparation and serving of meals. They help prevent and treat illnesses by promoting healthy eating habits and suggesting diet modifications based on individual need.
ANDI-Autism Network for Dietary Intervention P.O. Box 335, Pennington, NJ 08534-0335; www.autismndi.com Web site and newsletter dedicated to providing support and information on the gluten-free/casein-free diet.
Health Research Institute Pfeiffer Treatment Center 4575 Weaver Parkway, Warrenville, IL 60555; (630) 505-0300; www.hriptc.org
Kirkman Laboratories P.O. Box 1009, Wilsonville, OR 97070; www.kirkmanlabs.com This company is dedicated to producing vitamins and supplements especially for autism. Good explanation of each vitamin and its use.
Anju Usman, M.D. True Health Medical Center, 603 E. Diehl Road, Suite 135, Naperville, IL 60563 (630) 505-4040 are medical doctors trained to do surgery. Optometrists are schooled in the developmental (behavioral, functional or environmental) aspects of vision. Optometrists are more apt to use lenses, prisms and vision therapy to enhance and improve visual function. These interventions often improve children＊s academic and other abilities.
Kathy Anderson, M.D.
1327 Butterfield Road, Suite 618, Downers Grove, IL 60515; (800) CHECKUP; (800) 243-2587 Trained at Northwestern and Childrens Memorial.
Dr. James McDonnell Loyola University, (888) LUH-S888
David Mittleman, M.D. 1875 W. Dempster St., Suite 610, Park Ridge, IL 60068; (847) 292-2020
Wheaton Eye Clinic 2015 N. Main St., Wheaton, (630) 668-8250;604 Raymond Drive, Naperville, (630) 717-5858; 908 N. Elm St., Hinsdale, (630) 321-9429; www.wheatoneye.com Dr. Michael Kipp, pediatric ophthalmology, sees patients at all three locations. They can use a pediatric dilation spray (applied while your child＊s eyes are closed and sprayed onto the eyelashes) vs. eye drops and can provide private waiting area if requested.
OPTOMETRISTS/DEVELOPMENTAL OPTOMETRY These are doctors of optometry who specialize in muscular problems with eyes, tracking issues and neurocognitive problems along the developmental timeline. Most of their patient population comes from referrals from medical doctors and ophthalmologists. OPTOMETRISTS, FUNCTIONAL Functional optometry recognizes the following: visual differences can and often do interfere with learning; learning-related visual problems need the expertise of a functional optometrist who does a thorough diagnostic and management service; the goal of the functional optometrist is to improve visual function and relieve interfering symptoms; prompt diagnosis and proper therapy enhance the ability of all to learn to their full potential; and those with learning differences require help from many disciplines, and functional optometry contributes one part of the multidisciplinary team required for lifelong learning.
Sharon Luckhardt and David Maze 136 N Cass Ave., Westmont, IL 60559; Phone: (630) 969-280; Fax: (630) 969-2894; www.drsluckhardtandmaze.com
Neil Margolis, O.D. 1120 N. Arlington Heights Road, Suite 200, Arlington Heights, IL 60004; (847) 255-1040
ORTHOPEDIC SURGEONS specialize in the medical and surgical treatment of disorders and injuries to the bones, muscles and joints. Within orthopedics, there are also subspecialties.
Dr. John Grayhack Childrens Memorial Hospital with office in Westchester; (773) 327-1270
Samar S. Jaglan, M.D. Orthopedic Surgery Specialists, 8901 Golf Road, Suite 300, Des Plaines, IL 60016, (847) 824-4198
ORTHOTISTS AND PROSTHETISTS are degreed health-care professionals who evaluate and fit people requiring artificial limbs and various types of braces.
Thomas Lottermoser, CPO Ballert Orthopedic, 1250 N. Mill St., Suite 106, Naperville, IL 60563
PEDIATRICIANS
focus on the physical, social and emotional health of infants, children, teens, and young adults from birth to age 21. These medical doctors are developmentally oriented and trained in skilled assessment. They focus on prevention, diagnosis and management of the physical, developmental, behavioral and social problems that affect children.
ABC Pediatrics 1020 E. Ogden Ave., Suite 316, Naperville, IL 60563; (630) 355-0003
Roy Betti, M.D. 381 Schmale Road, Carol Stream, IL 60188; (630) 653-5115
Ronald Bohnenkamp, M.D. 501 Thornhill, Carol Stream, IL 60188; (630) 668-0078
Dan Campbell, M.D. Hinsdale Pediatrics, Hinsdale; (630) 323-0890
Childrens Health Partners Naperville; (630) 848-1700
Joseph Christiansen, M.D. Wheaton Pediatrics, 55 East Loop Road, Wheaton, IL 60187; (630) 690-7300
Michael Hoffman, M.D. 1200 S. York Road, Suite 2000, Elmhurst, IL 60126; (630) 941-4710
Home First Health Services 1100 N. Sherman Ave., Suite 107, Naperville; (630) 579-9620; www.homefirst.com; They emphasize a nonpharmaceutical, minimally invasive approach to health care. Support families that choose not to vaccinate. Wikipedia link
Peter Liber, M.D. Wheaton Pediatrics, 55 E. Loop Road, Suite 300, Wheaton, IL 60187; (630) 690-7300; specializes in ADHD and asthma
David Matusiak, M.D. 501 Thornhill, Carol Stream, IL 60190; (630) 668-0078
Elizabeth Pector, M.D. Spectrum Family Medicine, 1888 Bay Scott Circle, Naperville, IL 60540; (630) 305-3025; Dr. Pector has a child with special needs, and her nurse practitioner has a child on the autism spectrum.
Timothy Wall, M.D. , Linda Hamilton, M.D. Pediatric Health Associates, Medical Home program doctor, 636 Raymond Drive, Suite 205, Naperville, IL 60563, (630) 717-2300; and 550 E. Washington St., Suite D, West Chicago, IL 60185, (630) 876-4460
PEDIATRICIANS, DEVELOPMENTAL Developmental pediatricians specialize in offering comprehensive developmental assessments to children who are at high risk for developmental problems. General pediatricians will often refer a child to a developmental pediatrician if they suspect developmental delays. After diagnosis, the developmental pediatrician can design an early intervention program to help meet the child＊s specific needs.
Thomas Blondis, M.D. University of Chicago Hospitals, (773) 702-3095; Developmental pediatrician with the University of Chicago hospitals, developmental pediatric services with offices in Palos Heights and Hyde Park; www.uchospitals.edu/physicians/ thomas-blondis.html
Dana M. Brazdziunas, M.D. Director, Special Needs Program, Loyola University Hospital, 2160 S. First Ave., Maywood, IL 60153; (708) 327-9075. Now only accepting children from birth to age 3
Nancy Keck, M.D. 2401 Ravine Way, Suite 101, Glenview, IL 60025; (847) 724-1995
Michael Msall, M.D. 5841 Maryland Ave., Chicago, IL 60637 (773) 702-3095; www.uchospitals.edu OCCUPATIONAL AND PHYSICAL THERAPISTS
Occupational therapists provide services designed to restore self-care, work, and leisure skills to patients who have specific performance incapacities or deficits that reduce their abilities to cope with the tasks of everyday living. Physical therapists promote optimal health and functional independence through the application of scientific principles to prevent, identify, assess, correct, or alleviate acute or chronic movement dysfunction, physical disability or pain. Center for Independence 100 Plainfield Road, Countryside, IL 60525; (708) 588-0833 For children with cerebral palsy or traumatic brain injury. They have both OT/PT and functional life skills. Center for Speech and Language Disorders 195 W. Spangler, Suite B, Elmhurst, IL 60126; and 552 S. Washington St., Suite 109, Naperville, IL 60540; (630) 530-8551 This not-for-profit center offers a very family centered approach and includes E-Newsletter, parent support group, workshops/conferences, Web site with links. They also have a sliding fee scale based on 1) yearly income, 2) lack of medical insurance, 3) extenuating circumstances such as large medical bills, a sudden loss of income, etc. Community Therapy Services 2700 Kessinger Road, Suite B, Geneva, IL; (630) 208-8880; Provides developmental, music, occupational, physical, speech and language therapy as well as family support services, early intervention, social skills and Fast ForWord Communication Clubhouse 2901 Finley Road, Suite 102, Downers Grove; (630) 495-6800; Provides OT and Sensory Integration, SLP, oral motor, martial arts, art therapy counseling services and parent training. Their Parents Empowering Parents (PEP) Club offers support for parents of children with a variety of disabilities. Areas of specialty include apraxia, language related issues including ASD, hearing impairment and feeding difficulties. Programs range from the Connections program for 2- to 3-year-olds to the social language group Pragmatics in Action for 6- to 12-year-olds with Asperger＊s and related issues. Easter Seals DuPage and Fox Valley Region 630 S. Addison, Villa Park, IL 60181; (630) 620-4433, and 1323 Bond St., Naperville, IL 60540, (630) 357-9699; dfvr.easterseals.comServices include assisted technology, audiology, child development center, continuing education, medical nutrition therapy, occupational therapy, outreach programs, physical therapy, Playtime Talk, PALSS Club, social services, speech therapy, specialized clinics, Suitability, therapeutic listening and group therapy. Also have a variety of summer programs, social skills groups and parent support groups. Marianjoy Rehabilitation Hospital 26W171 Roosevelt Road, Wheaton, IL 60187; (630) 462-4000; www.marianjoy.org Milestones for Kids Success 2901 Finley Road, Suite 101, Downers Grove; (630) 792-1800; www.milestones4kids.com Milestones offers developmental, feeding, listening, occupational, physical and speech/language therapies. They also work on skills building and socialization and have summer social skills programs. Pediatric Rehabilitation Services 5201 Walnut Avenue, Downers Grove, IL 60515; (630) 964-4707; Specializes in sensory integration Pediatric Place 1804 Centre Point Drive, Naperville; (630) 955-1940 Rainbow Center 1245 Corporate Blvd., Aurora, IL 60505; (Near I-88 and Chicago Premium Outlet Mall); (630) 898-2200 Sensory Learning 900 Jorie Blvd., Oak Brook; (630) 572-1234 Little Friends 140 N Wright St., Naperville; (630) 355-6533; Serving people through numerous services including play therapy, social clubs, motor skills and music therapy. Adapted piano lessons are scheduled by appointment. PSYCHIATRISTS are Doctors of Medicine or Doctors of Osteopathy who specialize in the diagnosis and treatment of disorders of thinking, feeling or behavior. They work primarily through prescribing medications that seek to restore brain chemical balance and minimize symptoms of illnesses that intrude on a person＊s daily activities. Most brain disorders require treatment by a psychiatrist (medication) and a psychologist (talk therapy) to assist children and families in achieving a higher quality of life. A child and adolescent psychiatrist offers families the advantages of a medical education, the medical traditions of professional ethics, and medical responsibility for providing comprehensive care. There is currently a shortage of pediatric psychiatrists in the U.S. Tom DiMatteo, M.D. 7 Blanchard Circle, Suite 201, Wheaton, IL 60187; (630) 653-2300. Specializes in children and adolescents; also sees adults. Anna Ivanenko, M.D. Suburban Lung Associates, 25 N. Winfield Road, Winfield, IL 60190; (630) 690-2293 Oak Brook Behavioral Health 18W100 22nd St., Suite 130, Oakbrook Terrace, IL 60181; (630) 424-9204 Ken Phillips, M.D. 7 Blanchard Circle, Suite 201, Wheaton, IL 60187; (630) 653-2300; Specializes in adolescents and adults Christopher Sinnappan, M.D 852 S. West St., Naperville, IL 60540; Specializes in children and adolescents. PSYCHOLOGISTS have a masters degree or doctoral degree in psychology from an accredited university or professional school. They work with individuals through various forms of therapy to help people form effective coping skills and attain emotional health. Chad Alcorn, Psy.D. 336 Pennsylvania Ave., Glen Ellyn, IL 60137; (630) 858-8056, ext. 12; www.cdpcc.org Dr. Susan Andrews 43 E Jefferson, Naperville; (630) 355-7008; Family, adolescent, adult therapy Dr. Jane Conran (773) 859-1718; Therapy and behavior management Dr. Dorothy DeVoy 535 S Washington St., Naperville; (630) 355-3041; Clinical psychologist who works with special-needs children and their siblings. Ellen M. Keating, O.P., Psy.D. 336 Pennsylvania Ave., Glen Ellyn, IL 60137; (630) 858-8056, ext. 15; www.cdpcc.org James Natter, Psy.D. 507A Thornhill Drive, Carol Stream, IL 60188; (630) 752-9750, ext. 13; www.cdpcc.org Oak Brook Behavioral Health 18W100 22nd St., Suite 130, Oakbrook Terrace, IL 60181; (630) 424-9204 Rena Szabo, Psy.D. 30 S. Shumway Ave, Suite 1 South, Batavia, IL 60510; or 417 W. Roosevelt Road Suite 10, Wheaton, IL 60187; (630) 774-0177 (both offices) Dr. Tim Wahlberg Tri-Cities Psychological Services, 65 N. River Lane, Suite 204, Geneva; (630) 845-9644; Specializes in treating teens with autism and Aspergers. Fax: (630) 653-1010 Robert Kulkarni, M.D., Paul Mullen, Psy.D., David Torres, L.C.S.W. Great place especially for boys! SLEEP DISORDERS A Medical Doctor or Osteopath who provides comprehensive clinical evaluation, diagnosis, and management of children with all forms of sleep disorders. American Academy of Sleep Medicine One Westbrook Corporate Center, Suite 920, Westchester, IL 60154; Phone: (708) 492-0930; Fax: (708) 492-0943; www.aasmnet.org; Sleep quiz, fact sheet, find a sleep center, patient information and sleep related sites Center for Sleep Health Central DuPage Hospital, 25 N. Winfield Road, Winfield, IL 60190; (630) 933-2975 Anna Ivanenko, M.D. Suburban Lung Associates, 25 N. Winfield Road, Winfield, IL 60190; (630) 690-2293 National Center on Sleep Disorders Research National Heart, Lung, and Blood Institute, NIH, 6701 Rockledge Drive, Bethesda, MD 20892; Phone: (301) 435-0199; Fax: (301) 480-3451; www.nhlbi.nih.gov The National Sleep Foundation 1367 Connecticut Avenue, NW, Suite 200, Washington, DC 20036; (202) 785-2300 Stephen H. Sheldon, D.O. Director, Sleep Medicine Center, Children＊s Memorial Hospital, 2300 Children＊s Plaza, Chicago, IL 60614-3394; (773) 880-8230 Assistant: Susanna (handles appointments) SOCIAL WORKER/ COUNSELORS
NCO Youth and Family Services 1305 West Oswego Road, Naperville, IL 60540; (630) 961-2992 Warrenville Youth & Family Services 3S240 Warren Ave., Warrenville, IL 60555; (630) 393-7027 www.outreachcommunityministries.com SPEECH PATHOLOGISTS are trained to assess and treat people who have communication disabilities. Speech pathologists complete a degree that covers all aspects of communication including speech, writing, reading, signs, symbols and gestures. They also work with people who have difficulty swallowing. Action for Kids 2156 Deep Water Lane, Naperville; (630) 904-5660; www.actionforkids-usa.com; Specialists in pediatric therapy Rikki Amesquita (630) 355-3793; Licensed speech/language pathologist with more than 20 years＊ experience with children who exhibit a wide range of needs including those associated with language disorders, ASD, phonological disorder, apraxia, etc. She provides summer speech services. Linda Carlson Pediatric Speech and Language Therapy Services, Ltd., 3060 Ogden Ave., Lisle, IL 60532; (630) 983-6104 Center for Speech and Language Disorders 195 W. Spangler, Suite B, Elmhurst, IL 60126; and 552 S. Washington St., Suite 109, Naperville, IL 60540; (630) 530-8551 This not-for-profit center offers a very family centered approach and includes E-Newsletter, parent support group, workshops/conferences, Web site with links. They also have a sliding fee scale based on 1) yearly income, 2) lack of medical insurance, 3) extenuating circumstances such as large medical bills, a sudden loss of income, etc. Communication Clubhouse 2901 Finley Road, Downers Grove; (630) 495-6800 Community Therapy Services 2700 Kessinger Road, Suite B, Geneva, IL; (630) 208-8880 Edward Hospital Speech Clinic 701 S Washington, Naperville; (630) 527-3379 Elmhurst College Speech Clinic 190 Prospect Ave., Elmhurst; (630) 617-3555 Carol Ann C. Hammar Communication First, 1612 Trent Ave., Naperville, IL 60563, (630) 983-4177 Lisa Harris Pediatric Place, 3815 E. Main St., Suite B, St. Charles, IL 60174; (630) 584-7530, (630) 584-7762 Karen Hurst Naperville; (630) 978-4029 Institute for Communicative Disorders 9S265 Route 59, Naperville; (630) 922-6690; www.icdspeech.com Language, articulation and phonological disorders. Judy Jelm and Rebecca Heusner Pediatric Speech and Language Therapy Services, 200 E. Fifth Ave., Suite 110, Naperville, IL 60563; (630) 983-6104 Pediatric Place 1795 S. Washington, Naperville; (630) 369-6868 Pediatric Place 1804 Centre Point Drive, Naperville; (630) 955-1940 Pediatric Speech and Language Therapy Services 200 E. Fifth Ave., Naperville, (630) 455-4400 Pediatric Speech and Language Therapy Services 3060 Ogden Ave., Lisle; (630) 983-6104 Christina Rochon, MA CCC-SLP/L E-mail: cj.rochon@comcast.net Does in-home visits in the Naperville area. Has five years experience working with children ages 5 to 21. She has worked with students who have apraxia and oral-motor needs. She is trained using the Kauffman cards and has experience with several augmentative communication devices (Techspeak, Dynavox, MT4, Step-by-Step and Communication Builder). Brenda Skarin Benton House Speech Services, 4 N. Washington St., Naperville; (630) 357-8474 Speech Language Hearing Clinic 29 S. Webster, Naperville; (630) 369-0575 Suburban Pediatric Therapies Naperville, IL (630) 236-7000; Near Fox Valley Mall; Currently running Saturday social skills groups/parent day outs for kids on the spectrum. Therapy Associates Char Laursen, Laura Johnson and Marie Ruzicka; 932 N. Wright # 128, Naperville; (630) 305-0593; Pediatric speech therapy services specializing in oral motor/feeding, swallowing dysfunction and speech-language disorders. UROLOGISTS Pediatric urology encompasses the care of children who have problems related to the urinary tract and genital organs. David Hatch, M.D. Loyola University Medical Center; Ronald Mc Donald Children＊s Hospital; www.luhs.org; and 1S260 Summit Ave., Oakbrook Terrace, IL 60181; (630) 953-6600 One of the top doctors in his field 每 great with kids.§ Other Professionals Advocacy Groups The Arc of Illinois 18207-A-Dixie Highway, Homewood, IL 60430; (708) 206-1930; Fax: (708) 206-1171; www.thearcofil.org The Arc of Illinois is committed to empowering persons with disabilities to achieve full participation in community life through informed choices. Their Web site features info on the Consumer Stipend Project (check this out 每 if you have a child with a developmental disability, it helps pay for conference/workshop training expenses!!), legislation, newsletters, events, and advocacy campaign kits. The Council for Disability Rights 30 E. Adams, Suite 1130; Chicago, IL 60603; Phone: (312) 444-9484; Fax: (312) 444-1977; TDD: (312) 444-1967 On national, state, and local levels, the Council for Disability Rights advances the rights of people with disabilities. The council promotes public policy and legislation, public awareness through education, and provides information and referral services. Web site has a Parents Guide to Special Education. Exceptional Parent (877) 372-7368; www.eparent.com Publishes Exceptional Parent magazine monthly. The Family Support Network (309) 693-8981; www.familysupportnetwork.org Their mission is to eliminate the waiting lists for the state＊s Family Assistance and Home Based Support Services Programs. Family Voices of Illinois 8331 Kimball Ave., Skokie, IL 60076-2926; Phone: (773) 274-8683; Fax: (773) 274-8685; Toll free: (888) 950-8683; www.familyvoices.org E-mail: familyvoicesillinois@yahoo.com This is part of the Family Voices National Network, and has been run by two parent volunteers for more than 10 years. Their mission is to share information with other families about health care for children with special needs in our state. Calls are generally returned on evenings and weekends, and they ask callers to leave a message saying when is a good time to reach them. They also have an electronic mailing list, and are involved with health-care advocacy on the state level, and collaborate with Division of Specialized Care for Children (DSCC), Illinois Title V CSHCN program, and the Illinois Chapter of American Academy of Pediatrics, Committee on Children with Disabilities, in addition to other parent groups and disability organizations. Illinois Life Span Project, Inc. 18207 Dixie Highway, Suite A; Homewood, IL, 60430; Toll free: (800) 588-7002; Voice: (708) 206-3993; Fax: (708) 206-1171; www.illinoislifespan.org Statewide information resource and referral agency for advocacy and services for people with developmental disabilities. They have sections on parents rights, navigating the advocacy and support systems, sibling support project, etc. Illinois TASH 2745 E. Broadway, # 101; Alton, IL, 62002; (847) 465-0575, ext. 5049; www.tash.org/chapters/illinois Illinois TASHs mission is to advocate and promote equity, diversity and quality of life for people with disabilities, their families and friends. They provide information and referrals on family support resources; family/parent groups service all disabilities. Project CHOICES (Children Have Opportunities in Inclusive Community Environments and Schools) Naperville, IL; (630) 778-4508; www.projectchoices.org Offers free technical assistance to schools to facilitate inclusive education. Assistive Technology Defining Assistive Technology Assistive technology devices are mechanical aids that substitute for or enhance the function of some physical or mental ability that is impaired. Assistive technology can be anything homemade, purchased off the shelf, modified, or commercially available that is used to help an individual perform some task of daily living. The term assistive technology encompasses a broad range of devices from low tech (pencil grips, splints, paper stabilizers) to high tech (computers, voice synthesizers, Braille readers). These devices include the entire range of supportive tools and equipment from adapted spoons to wheelchairs and computer systems for environmental control. Getting Assistive Technology Devices and Services through the School District If you think your school-aged child needs assistive technology devices and services: Request an evaluation. State why you think an assistive technology evaluation may be helpful, e.g. how assistive technology may help your child reach his/her educational goals. Obtain as much information as possible about the assistive technology you are requesting so that you will be prepared to discuss the options with school officials. Make regular contact with school staff to get updates regarding the status of the request for assistive technology devices and services (including evaluations). Make sure your entire childs assistive technology needs, both equipment and related services, are stated in the IEP. Include parent training, if it is needed. Make sure the IEP reflects where and when the assistive technology will be used (at home; during the summer; for all written assignments, reports). Find out how staff will be trained to use the assistive technology, and identify who will provide needed supports. Find out who will be responsible for maintenance of the device(s) if repair is needed. In the event of breakdown, what backup technology will be provided? Follow up face-to-face meetings and telephone conversations with written correspondence summarizing your understanding of decisions that were made or information that was conveyed. Maintain dated records of all contact and discussions about the assistive technology. Keep copies of all correspondence (in chronological order) to and from school staff. Keep copies of the IEP, amendments, and other forms. -- An Educators Guide to Evaluating the Use of Technology in Schools and Classrooms www.ed.gov/PDFDocs/handbook2.pdf Educational Advocates An educational advocate is an attorney who specializes in education law. Many educational advocates work heavily or exclusively in the area of special education law. Since special ed law is extremely complicated, access to a reliable attorney can be a critical tool in any parent＊s toolbox. Everyone is Welcome, Inc. 3 S. Second St.; St. Charles, IL, 60174; Phone: (630) 584-0971; Fax: (630) 584-7130; www.eiwelcome.com Established in January 1996 and operated by Mark W. Doyle. Everyone Is Welcome provides individual/family advocacy, technical assistance to schools/providers, staff development to schools, adult supports brokering, grassroots network organizing, workshops/conferences on topics relating to individuals with disabilities, their families and professionals who are working toward the inclusion of people with disabilities into society. Family Resource Center on Disabilities 20 E. Jackson Boulevard # 300, Chicago, IL 60604; Phone: (312) 939-3513; TDD: (312) 939-3519; Fax: (312) 939-4199; www.frcd.org The FRCD was a pioneer as a coalition that covered all disabilities. In 1976 it became one of five pilot programs to operate a parent center funded by the U.S. Department of Education, Office of Special Education Programs. FRCD offers family support project, youth advocacy project, parent-to-parent training project, and seminars. Illinois Law Help Located at the Chicago-Kent School of Law, this Web service provides legal information and referrals for Illinois residents. Click on the ※Education§ tab and then select ※Special Education and Learning Disabilities.§ Maureen Lowry-Fritz, J.D., M.A. 4200 Kingshill Circle, Naperville; (630) 222-9735; www.specialedmoms.com; E-mail: Maureen_lowryfritz@yahoo.com Law consulting services and special education lawyer; offers in-home IEP training sessions for thorough instruction in special ed law, mock IEP meetings, ※quick question§ consults, speaking engagements. Monahan & Cohen 225 W. Washington St., Suite 2300, Chicago; (312) 419-0252; www.monahan-cohen.com/services Special Education and Disability Law Precision Education Inc. Catherine Whitcher, M.Ed.; (815) 302-1273; E-mail: info@precisioneducation.com; www.precisioneducation.com; This educational consulting service provides individualized parent education and coaching in relation to the school system, effective strategies for communicating with schools, placement coordination and designing creative IEPs for accountability and success. Wrights Law www.wrightslaw.com; Also see Parent Training and Information Centers of Illinois§ on www.isbe.net Offers information on federal laws that affect children with special needs and their families, advocacy information, resource links, books, conferences, and a free electronic newsletter, The Special Ed Advocate. Estate Planning, Legal Advisers Ehlert Financial Group 每 Protected Tomorrows Nate Eads, CFP Phone: (847) 522-8080, ext. 236 Fax: (847) 522-8081; E-mail: nateeads@ehlertfinancialgroup.com The Estate Planning Group, William A. Deitch, Esquire 600 W. Roosevelt Rd., Wheaton, IL 60187; (630) 871-8778; teplg.com Kirsten Izzat, kirsten@teplg.com Lifes Plan Financial Planning Scott Nixon Mark Doyle Attorney (630) 628-7189; scottn@raygraham.org Financial Advisers A financial services professional can assist in future planning and developing a road map to help you make informed decisions. Alexandra B. Conroy, Waddell & Reed, Inc. One Oak Hill Center, Westmont, IL 60559; Phone: (630) 789-0044; Fax: (630) 789-8005 Met Life Special Needs Planning Dr. Irving Birnbaum (773) 725-4167; ibirnbaum@metlife.com Insurance Health Claim Assistance, Inc. 873 Brentwood Drive, West Chicago, IL 60185; (630) 562-1000; www.healthclaimassistance.net Illinois Insurance Department Michael T. McRaith, Commissioner 320 W. Washington St., Springfield, IL, 62767; James R. Thompson Center, 100 W. Randolph St., Suite 9-301, Chicago, IL 60601-3395; (312) 814-2420; www.idfpr.com/DOI/Default2.asp MedicClaim Consultants 1716A Pickwick Lane, Glenview; (847) 657-1167; E-mail: medicclaim@aol.com MedicClaim advocates on your behalf with medical providers and insurance companies, appeals denied claims and will relieve the burden and confusion of the medical claim process.